What is Ewing's Sarcoma?
Sarcomas are tumors that are found in bone and soft tissue. Soft tissue includes: muscles, tendons, fibrous tissues, fat, blood vessels, nerves, and synovial tissues (which are found in joints). Ewing's Sarcoma is a specifc type of sarcoma that tends to appear in the middle area of the bones, most often in the hip, ribs, upper arm, and thigh. These are considered malignant cancers because they can invade surrounding tissue and metastasize to other parts of the body. Tumors can spread to lungs, bone, and bone marrow. Kori's original tumor was found in her pelvis and at the time of diagnosis had already metastasized (spread) to her lungs.
There are approximately 300-400 new cases of Ewing's Sarcoma diagnosed annually in the United States. A majority of those afflicted are between the ages of 10-20, and Ewing's is considered a more prominent in teenage boys. Kori was 13 at the time of her diagnosis-soon to be 14.
The most common presenting complaints for Ewing's Sarcoma patients are pain and swelling. Because these symptoms are suggestive of a sport's injury or growing pains, a delay in the diagnosis of a malignancy may occur. Kori, being an avid soccer player had complained of hip pain that she believed was in part to her active lifestyle. It wasn't until she was benched because of limping that she was diagnosed with a tumor in her pelvis that was causing her to limp while running.
Most Ewing's patients are treated with a combination of chemotherapy and/or surgery to remove the tumor. Kori is currently undergoing a regimen of 14 chemotherapy treatments. She is scheduled to finish chemo in September 2009.
Kori is passionate about spreading information about Ewing's Sarcoma. The mission of the i-ROK Foundation is to do just that - educate the public and raise money for further research for Ewing's Sarcoma and to help others that are going through the same thing.